Just to keep you posted, I had a meeting with the consultant and dietitian on Thursday, their feedback was good on the bloods and kidney/liver function - 'responding' well to the chemotherapy.
Lungs no change, still struggle to breathe from time to time, mainly because of the morphine I'm on for pain relief.
Start next cycle of chemo on bank holiday Monday, so that week I'll pretty much either be in agony, asleep.
One of the reasons that I write this blog is so people don't talk constantly to me about my cancer, I'd appreciate it if you didn't mention it when you got in touch.
Also, please in politest way possible, don't send me articles, information or anything material regarding cures for cancer, I know people mean well however its just as damaging as talking about it. I've got a two consultants, dietitian, district nurse, MacMillan nurse, GP and nutritionist all feeding me their sound advice on a weekly basis. I'm gonna be OK x
Thursday 24 March 2016
Sunday 20 March 2016
The start
Please note I got a D in English...
To be fair I hate people who blog, I consider them massive wankers who don't find Facebook status enough or get really frustrated they're only allowed 120 characters on Twitter.
However this blog isn't to share my opinion on something, its basically to you the facts so I don't have to repeat it over and over when I'm literally trying to live a 'normal' life.
I'm 26, healthy (well was), had the dream job and cracking life because on a daily basis I got to hang around with awesome people (Skiddle lot especially). This all recently changed, after going into GP with heart burn several times, my GP decided to send me for every type of blood test going only to find the results were of an 80 year old man. Liver, kidneys, bleeding on the stomach, anaemic and no vitamin D. This resulted in going to get a camera down my throat to inspect my stomach on the off chance I might have stomach ulcers, unfortunately for me they found a large tumor on the entrance to my stomach at the end of my oesophagus.
Further down the line I had a CT scan which they found the cancer aggressively had spread to my lungs, liver, kidneys and stomach. Which is impossible to operate on.
This lead to visit at Christies in Manchester with two top consultants, which i'll never forget. They opened the conversation with "do you want to know the full facts, or the 'soft' version?" - me being me, wanted to know it, all which then their second sentence out of their mouth was life span is 16 months based on 80 year old man, 24 months based on my age if it goes well.
Yes, I had just been told in 3 minutes that I could possibly not live till I'm 30, not have children, not be able to fulfil my all time dream of knocking Micheal Eavis off his high horse and putting on a better festival than him (it's nice to dream).
The next step, chemo - its done in courses, a course is 3 weeks. It starts with a full day in Christie's getting all sorts of drugs pumped into you on a drip, painless but boring then followed by course of shit loads of funny looking tablets for 14 days after wards. I've been told I have to do 3 courses in total (9 weeks) then I go back in for a CT scan to measure the effect its had on my cancer cells.
I forgot to mention at this point, I'm got some rare cancer which isn't curable and very hard to treat, its only because I have some strange gene called HER2 (Don't go googling it) that they possibly slow it down, but who knows, this whole process is a test, each day, each week.
I've been at rock bottom, depressed and asked my self on many occasions whats the point but the thing thats keeping me alive in my eyes isn't the chemo because unfortunately till a consultant tell me other wise. My story doesn't have a happy ending. What I DO have, is my incredible family and friends, that what keeping me going, each hour, each day. Not forgetting my incredible girl friend, Naomi.
One of the reasons I writing this though it, is really asking, when you talk to me, talk to me at Glaba, Chris, C#nt, Sh#t head, whatever your nick name was for me.... but please don't talk to me at Chris with Cancer its too hard for me to hear over and over and it destroys me inside. The drugs, the pain, the tiredness is already a reminder.
I know everyone means well, and everyone of you, you know who you all are, I'm smiling now, because of you, you lot. So I 100% appreciate it, please don't think I'm being rude.
So this blog really will be used for medical updates, its not going to be writing my lows and my highs or what I had for breakfast.
I hope you don't think I'm being rude really, please don't, I just want a bit of normality back in my social life that's all.
Thank you, thank you for taking the time to read my story, now I'm gonna pop my chemo pills and have a little dash of morphine to go with it and watch coronation street omnibus - isn't that pat a wanker!
P.s Vote for Sally Wesbter
P.p.s Back in Christies next week with the consultant, I'll write an update on here to keep you posted.
I hope I don't sound like a wanker, I'd just rather let people know this way.
To be fair I hate people who blog, I consider them massive wankers who don't find Facebook status enough or get really frustrated they're only allowed 120 characters on Twitter.
However this blog isn't to share my opinion on something, its basically to you the facts so I don't have to repeat it over and over when I'm literally trying to live a 'normal' life.
I'm 26, healthy (well was), had the dream job and cracking life because on a daily basis I got to hang around with awesome people (Skiddle lot especially). This all recently changed, after going into GP with heart burn several times, my GP decided to send me for every type of blood test going only to find the results were of an 80 year old man. Liver, kidneys, bleeding on the stomach, anaemic and no vitamin D. This resulted in going to get a camera down my throat to inspect my stomach on the off chance I might have stomach ulcers, unfortunately for me they found a large tumor on the entrance to my stomach at the end of my oesophagus.
Further down the line I had a CT scan which they found the cancer aggressively had spread to my lungs, liver, kidneys and stomach. Which is impossible to operate on.
This lead to visit at Christies in Manchester with two top consultants, which i'll never forget. They opened the conversation with "do you want to know the full facts, or the 'soft' version?" - me being me, wanted to know it, all which then their second sentence out of their mouth was life span is 16 months based on 80 year old man, 24 months based on my age if it goes well.
Yes, I had just been told in 3 minutes that I could possibly not live till I'm 30, not have children, not be able to fulfil my all time dream of knocking Micheal Eavis off his high horse and putting on a better festival than him (it's nice to dream).
The next step, chemo - its done in courses, a course is 3 weeks. It starts with a full day in Christie's getting all sorts of drugs pumped into you on a drip, painless but boring then followed by course of shit loads of funny looking tablets for 14 days after wards. I've been told I have to do 3 courses in total (9 weeks) then I go back in for a CT scan to measure the effect its had on my cancer cells.
I forgot to mention at this point, I'm got some rare cancer which isn't curable and very hard to treat, its only because I have some strange gene called HER2 (Don't go googling it) that they possibly slow it down, but who knows, this whole process is a test, each day, each week.
I've been at rock bottom, depressed and asked my self on many occasions whats the point but the thing thats keeping me alive in my eyes isn't the chemo because unfortunately till a consultant tell me other wise. My story doesn't have a happy ending. What I DO have, is my incredible family and friends, that what keeping me going, each hour, each day. Not forgetting my incredible girl friend, Naomi.
One of the reasons I writing this though it, is really asking, when you talk to me, talk to me at Glaba, Chris, C#nt, Sh#t head, whatever your nick name was for me.... but please don't talk to me at Chris with Cancer its too hard for me to hear over and over and it destroys me inside. The drugs, the pain, the tiredness is already a reminder.
I know everyone means well, and everyone of you, you know who you all are, I'm smiling now, because of you, you lot. So I 100% appreciate it, please don't think I'm being rude.
So this blog really will be used for medical updates, its not going to be writing my lows and my highs or what I had for breakfast.
I hope you don't think I'm being rude really, please don't, I just want a bit of normality back in my social life that's all.
Thank you, thank you for taking the time to read my story, now I'm gonna pop my chemo pills and have a little dash of morphine to go with it and watch coronation street omnibus - isn't that pat a wanker!
P.s Vote for Sally Wesbter
P.p.s Back in Christies next week with the consultant, I'll write an update on here to keep you posted.
I hope I don't sound like a wanker, I'd just rather let people know this way.
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